"I thought I would get pregnant, have a child like everybody else does, disability never occurred to me. It was a shock. Meeting other parents helped me overcome my grief."

'Finding Your Way'
by Diana Bownan

About the Website

Parents and Carers of Autism was made as portal to Autism resources. If you have something autism related you would like linked with this site feel free to send it along HERE for approval. There is also an autism forum where you can pop in to read info, leave a message or join in a chat. Most members are parents of children with autism and know the difficulties parents face raising their special needs child.

Play YOUR ROLE in Autism Research Today!

Sleep Research

We are a research team at the University of Texas Health Science Center at Houston in the Division of Pediatric Neurology, led by Dr. Richard Frye, and we are would like to let you know about a new research study we are conducting.

The importance of sleep for adults is increasingly emphasized all over the media, yet surprisingly little is known about the sleep habits of children, with or without autism. This survey will allow us to explore this new area, with the aim of targeting common sleep problems for future treatment and prevention, and to guide caregivers in regards to normal childhood sleep behavior.

The study is in online survey format for maximum convenience and anonymity, and measures have been taken to ensure the privacy and security of survey takers. In it, we ask questions about the child’s sleep habits and previous medical history.

Occupational Therapy Research

Hello, we are an Occupational Therapy student research group from Columbia University hoping to bridge the gap between parents and research professionals. We are investigating the effectiveness of occupational therapy for increasing participation in children with autism spectrum disorders based on parental perspectives. Your opinion is highly valuable to us. By clicking on the link below and filling out the survey, you will be aiding in research that will hopefully help to improve the effectiveness of treatments for children with autism spectrum disorders.


Please click on this link to take you to the survey site for more information: 

Survey

Please note that by entering this site you are under no obligation to participate in this study and may exit at any time. Thank you!

Genetic Causes of Autism

The Thompson Center for Autism at the University of Missouri: Columbia is seeking families to participate in the Simons project, a nationwide initiative to search for the genetic causes of autism.  Eligible families must have a child age 4-17 diagnosed with an autism spectrum disorder (ASD), and no history of ASD in siblings or close relatives. Both biological parents must be available to participate. The child with ASD will receive a free neuropsychological assessment and the family will be asked to participate in a variety of assessments and interviews and donate blood for DNA. Each family member will be compensated $50 for participation. For more information, please contact Nicole Takahashi at (573)884-1893 or takahashin@missouri.edu

http://sfari.org/ssc

http://thompsoncenter.missouri.edu/